letters for chi/ fundraiser/ update and prayers

[Vesanic]

well, the last month has been a real test of faith and strength for everyone. dai has been in the hospital for the whole time with the exception of the 12 hours he was released, only to have him back in icu. i'm happy to say he is pretty much stable now, but the trade off is the medication he is on to stop the episodes is keeping him in what i can only call a super coma. very out of it and sleeping most of the time. do you want to hear the real kicker-while he was having these episodes, we were trying to get him into stanford or sfo so we can get a real team of neurologists to take an interest in not just keeping him stable but waking him up. however, now that the episodes have stopped, he is considered "stable" and no longer able to be admitted.

for the last few weeks i have been racking my brain trying to figure out the next best thing that we need to do for dai. what is the right road that we are supposed to do that will help him. yesterday while i was driving up here, i felt like it hit me. he needs to have his bone flap put back in. the dr.'s here said that he needs to be infection free for 6 weeks. the last time he had one was about 5 weeks ago, the first time he was admitted to the hospital. i really think it would be so important to dai to be whole again.

that is where i am at now. i am waiting for his insurance to call me back so i can start my one woman army to get them to authorize it and am going to talk to the hospitalist tomorrow to connect with them about how dai is stable enough to be transferred to the hospital where the original surgery was. the other thing we are dealing with is where is the right place for dai to go from the hospital. almost every place we have tried will not even consider taking him because of his fragile condition. getting his bone flap put back in will open up many more possibilities. i still feel, with my whole heart, that the oxygen chamber that we got him (thanks to all of you angels that donated and made it possible) is going to help him. unfortunately, we cannot find a place that will allow that to be put in the facility. however, if he has his bone flap put back in, we can bring him to the chamber. right now, without his bone flap, trying to drive him anywhere, is too much of a risk. all it would take is one trauma to the head, and i don't even want to think about it.

the last few weeks dai has hardly opened his eyes, mostly due to the medication, partly due to being exhausted from being sick. yesterday when i got in to see him, i wasn't going to let him just sleep. i sat him up and every time he tried to drift off, i woke him up again. after awhile, and some intense therapy, he was awake and listening. i was just talking to him about what he needs to do and that he needs to start trying to move his body and pull himself up like he was doing before. his eyes were starting to drift off again and i when i mentioned his sons name, his eyes shot open and he seemed like was just he was thinking about every great thing about his kid that he loved. it made me cry a little, he has so much waiting for him.

i'm sorry it's been so long since we have blogged. it's been day by day, emotionally, physically, spiritually, everything. but yesterday i realized that dai is holding on because he wants to. he wants to come back to us. he needs our help, he needs a good doctor that want to help him find his way. so that's what we will find for him.

as always, thank you to everyone that continues to send dai love, prayers, and keep faith in him. i will keep you updated. i can feel that things are starting to turn around and i can't wait. i am ready for it.

- mae

As Gina doesn't log in SL anymore, hopefully she won't get upset if she sees that I put the updates here.

[Hell_Tanner]

I've always thought that bone flap thing was a bit awkward...

[defTHE1s]

thanks vesanic..

so.. is because of that that i don't get the daily digest since like... two or three weeks? because gina haven't had the time to log in and blog?

[Hidalgo]

well, the $50,000 goal has been met. cool deal

[Vesanic]

Yeah, and it doesn't stop.

ONELOVEFORCHI T-SHIRTS ARE UP.

http://oneloveforchi.com/index.php/one-love-for-chi-t-shirts-on-sale-now/


I can't choose between the second and the third one.

[Sugartolove]

I've ordered  mine, and I will wear it when I go to see Deftones at Reading festival and at HMV forum, I think  I want to order another one eventually.

[Hell_Tanner]

I really want one but $28 for overseas shipping....ouch! ...I'll still buy one eventually...

[Sugartolove]

I know, and I wouldn't have bought one if it wasn't for the fact that it goes to Chi. If the money went to like a company or a shop or something,  no way.
I can't wait to get it though and wear it 

[Hell_Tanner]

Yeah, I wouldn't mind if the extra $28 went to Chi and his family, but as far as I know it won't...

[defTHE1s]

Cool! let's see if i have money now to order the 1st or the 4th (or both!!)

[oneloveforchi]

I really want one but $28 for overseas shipping....ouch! ...I'll still buy one eventually...

i know.. but that is the usps rate for priority and sending any way less than that is risky... may never get it.

one love for chi,
gina

[oneloveforchi]

update: http://oneloveforchi.com/index.php/show-me-the-money/

one love for chi,
gina

[defTHE1s]

Gina.. i don't get again the daily news.. is this thing working? or what?

thanks for the updates!!

[oneloveforchi]

Gina.. i don't get again the daily news.. is this thing working? or what?

thanks for the updates!!

it hasn't gone out today yet.. usually goes out at the end of the day.. but only if there has been a post.

thanks.

one love for chi,
gina

[Martin]

Thanks again for keeping us up-to-date.
Shirts look awesome too.

[defTHE1s]

thanks gina

Thanks again for keeping us up-to-date.
Shirts look awesome too.

and i'm looking poor...
I'll do as much I can to get at least one shirt.

[Sugartolove]

Yeah, I wouldn't mind if the extra $28 went to Chi and his family, but as far as I know it won't...

No you're probably right... But I choose to look at it like this...
I have to pay  $28 for Chi to get his fair share - then I'm okay with paying it.
And if I didn't spend it on Chi, I'd spend it on something else..

[oneloveforchi]

Yeah, I wouldn't mind if the extra $28 went to Chi and his family, but as far as I know it won't...

No you're probably right... But I choose to look at it like this...
I have to pay  $28 for Chi to get his fair share - then I'm okay with paying it.
And if I didn't spend it on Chi, I'd spend it on something else..

none of the $28 goes to chi.. it goes to international shipping...

one love for chi,
gina

[devilinside]

wish list for nursing facility: (these are approximate numbers and could change as his condition improves.)

    * convalescent care: $15,000/mo.
    * wheelchair accessible van: $5000/down + monthly payments of ~$500/mo.??  (for use while he requires a wheel chair)

home care requirements:

    * hospital bed, collapsible wheel chair etc.. and all home care required equipment: $
    * home care/trained home care assistant:  $ 5000.00/mo.
    * housing: $2000.00/mo.
    * continued physical therapy as needed: $ 2000.00/mo.
    * medication: $1000.00/mo.

[Martin]

Yeah, I wouldn't mind if the extra $28 went to Chi and his family, but as far as I know it won't...

No you're probably right... But I choose to look at it like this...
I have to pay  $28 for Chi to get his fair share - then I'm okay with paying it.
And if I didn't spend it on Chi, I'd spend it on something else..

none of the $28 goes to chi.. it goes to international shipping...

one love for chi,
gina

I just got that too. I thought the whole thing would be $28, but damn, the whole thing's $48...
So much for international shipping?